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History of ShareGenome Organization and NGENI Foundation

ShareGenome Organization

 The ShareGenome Organization was founded in 2017 by Dr. Min Seob Lee in San Diego, California. Recognized as a 501(c)(3) nonprofit organization by the IRS in 2018 (EIN: 82-1473050), ShareGenome was established to promote genomics research and facilitate the collection, analysis, and sharing of genomic and health data. The organization focused on creating a collaborative ecosystem for researchers, clinicians, and individuals, enabling discoveries in precision medicine while adhering to the highest standards of ethical data sharing.

As a tax-deductible nonprofit institute, ShareGenome prioritized public education, accessibility to genomic information, and fostering scientific breakthroughs. Its work has laid the foundation for global collaboration in genomic science and continues to advocate for equitable access to personalized medicine.

NGENI Foundation

 Building on the success of ShareGenome, Dr. Min Seob Lee established the NGENI Foundation as an extension and enhancement of his mission. While ShareGenome concentrated on genomics and data sharing, NGENI was created to broaden the scope to include next-generation technologies and their integration into healthcare.

The NGENI Foundation focuses on:

  • Precision Medicine: Advancing healthcare through personalized genomics and AI-driven solutions.
  • Next-Generation Sciences: Expanding research into cutting-edge technologies that support longevity, wellness, and disease prevention.
  • Integrated Research and Development: Bridging genomics, artificial intelligence, and emerging healthcare innovations.

Operating as a division of ShareGenome, the NGENI Foundation consolidates resources and expertise to tackle broader scientific challenges while remaining aligned with ShareGenome's ethos of ethical research and community-focused initiatives.ShareGenome was established to promote genomics research and facilitate the collection, analysis, and sharing of genomic and health data. The organization focused on creating a collaborative ecosystem for researchers, clinicians, and individuals, enabling discoveries in precision medicine while adhering to the highest standards of ethical data sharing.

As a tax-deductible nonprofit institute, ShareGenome prioritized public education, accessibility to genomic information, and fostering scientific breakthroughs. Its work has laid the foundation for global collaboration in genomic science and continues to advocate for equitable access to personalized medicine.

Unified Visions & Missions

Visions

 Together, ShareGenome Organization and the NGENI Foundation reflect Dr. Min Seob Lee's vision of transforming healthcare through collaborative innovation. Key milestones include:

  • Founding ShareGenome to promote genomic data sharing and support tax-deductible contributions to precision medicine research.
  • Expanding to the NGENI Foundation to include next-generation technologies such as AI, biotechnology, and molecular diagnostics, ensuring a holistic approach to future healthcare needs.

By integrating genomics with AI and other advanced technologies, the combined efforts of these organizations are driving the development of next-generation healthcare solutions, creating a legacy of innovation and accessibility for future generations.ShareGenome was established to promote genomics research and facilitate the collection, analysis, and sharing of genomic and health data. The organization focused on creating a collaborative ecosystem for researchers, clinicians, and individuals, enabling discoveries in precision medicine while adhering to the highest standards of ethical data sharing.

As a tax-deductible nonprofit institute, ShareGenome prioritized public education, accessibility to genomic information, and fostering scientific breakthroughs. Its work has laid the foundation for global collaboration in genomic science and continues to advocate for equitable access to personalized medicine.

Mission

  The unified mission of the ShareGenome Organization and the NGENI Foundation is to revolutionize healthcare through the integration of genomics, artificial intelligence, and next-generation technologies. Together, they aim to:

  • Democratize genomic research by enabling secure, ethical, and accessible data sharing to drive breakthroughs in precision medicine.
  • Advance the development of personalized therapies and healthcare solutions that promote wellness, longevity, and disease prevention.
  • Foster innovation in genomics, biotechnology, and AI, creating transformative healthcare technologies for the future.
  • Educate and empower individuals and communities to understand and benefit from the potential of genomics and next-generation sciences.
  • Build a collaborative ecosystem that bridges science, technology, and medicine to deliver equitable and impactful healthcare solutions globally.

Through their combined efforts, these organizations embody a shared vision of harnessing cutting-edge research and technology to improve health outcomes and create a sustainable and inclusive healthcare future.

team member

Dr. Min Seob Lee

Dr. Young Hyun You

Dr. Young Hyun You

 Dr. Min Seob Lee is a executive director of the foundation, and  philanthropist and visionary leader, dedicated to driving technological innovation as the founder of NGENI foundation and ShareGenome organization. He is also the founder of Diagnomics lab. and currently serves as the CEO of Eone Diagnomics Genome Center (EDGC) in Korea. In addition, Dr. Lee is a visiting professor in the Department of Convergence Technology at Incheon National University (INU).

An accomplished author, Dr. Lee wrote "Homo Hundred Genome Revolution", reflecting his expertise and thought leadership in genomics. As a global pioneer in genomics, molecular biology, and personalized medicine, he has made significant contributions to advancing precision medicine applications.

Dr. Lee completed his post-doctoral fellowship at Harvard Medical School and earned his Ph.D. from City of Hope National Medical Center in California, solidifying his standing as a world-renowned expert in the field.

Dr. Young Hyun You

Dr. Young Hyun You

Dr. Young Hyun You

  Dr. Young Hyun You is a director of the project at the foundation and a multidisciplinary translational medicine researcher with extensive expertise in metabolic diseases, aging, and cancer. At the University of California, San Diego, Dr. You served as a Project Scientist, where she investigated molecular mechanisms in cells and mouse models. Additionally, she contributed to cancer research at UCSD's Moores Cancer Center, studying protein degradation, cancer stem cell maintenance, and immune response mechanisms.

Dr. You holds a Ph.D. in Biological Sciences from the City of Hope National Medical Center and has conducted postdoctoral research at the University of California, Berkeley, and the Lawrence Berkeley National Laboratory, focusing on aging, cancer, and cellular mechanisms. Her work includes expertise in metabolomics, bioinformatics, and machine learning. Dr. You’s research combines cutting-edge science with translational applications, driving innovation in genomics, therapeutic development, and biomarker discovery to advance personalized medicine and global health initiatives.

Mr. Isaac Kise Lee

Ms. Michelle Kira Lee

Ms. Michelle Kira Lee

 Mr. Isaac Kise Lee is a scientist and project manager at the foundation, dedicated to advancing technologies and harnessing big genome data through computational expertise and his deep understanding of the human genome. Isaac was one of the first students to have his whole genome sequenced and analyzed, an experience that sparked his passion for using genomic information to benefit people and drive scientific and technological progress. His journey began at BioMe Camp, where he became a strong advocate for leveraging genome data to address real-world challenges. He holds a B.S. in Biological Sciences from the University of California, Irvine (UCI) and an M.S. in Computer Science (specializing in Bioinformatics and Machine Learning) from Incheon National University. Isaac’s interdisciplinary background uniquely positions him to contribute to innovative projects at the intersection of genomics and computational science.

Ms. Michelle Kira Lee

Ms. Michelle Kira Lee

Ms. Michelle Kira Lee

Ms. Michelle Kira Lee is the Project Coordinator at the foundation, leveraging her extensive background in genomics, science communication, and project management. She previously served as the President of MossGenomics, focusing on consumer genomics applications. Her work combines scientific expertise with public engagement, exemplified by her recognition as one of the Top 10 Fastest Growing Instagram Accounts of 2019. Michelle is also an accomplished author, publishing research on the Transgenerational Effects of Obesogens, and a DNA app developer. She gained significant research experience as a Lab Manager and Researcher at the Blumberg Lab (UCI), and served as Vice President of the Genetic Counseling SIG at UCI. Additionally, she completed an internship at UCI Pediatrics' Division of Genetic and Genomic Medicine.  Michelle successfully oversaw the launch of COVID-19 testing services during the pandemic. She holds a Bachelor's degree in Biology from UCI and continues to lead innovative initiatives at the intersection of science and consumer engagement.

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Eone Diagnomics Genome Center

Consumer & Clinical Genome Service

My Genome Box

Open Sharing Platform for My Genome

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